This week is a make ya or break ya week. We will be in hospital for a Video EEG Monitor. For those who don’t have Epilepsy in their background, that means spending almost or more than a week with probes all over your head and chest, and a video monitor recording the seizures.
You can’t walk around, you can only go to the bathroom, and usually you are in a private room. Hopefully, if the hospital is not full, we can have a double and I can sleep there.
We have been doing this since 1996. We know the drill. Confined to the bed, my son will be monitored to see how many seizures are occurring and where in the brain they are occurring.
It’s a fascinating procedure. And in the 21 years since this started for my family there has been many changes in technology. In the beginning, the monitors were read on video tape, in real time. Then you would have to wait for the results as it would take the neurologists weeks to review the video results. Now it is done in real time with doctors giving hourly or daily reports.
But we will have the capability of being in a normal hospital with normal visiting hours and a phone, TV, and lots of support.
This particular test will be the last step in determining other placement, which now is out of state. Way out of state. Once we know the results, and the admission is complete, I will share that location.
In the meantime, have a good week my friends, and pray for us please.
This is the latest information I have to share:
And that my son was punched in the back, yesterday, by another patient. Nice. Real nice. He’s okay, but he also knows that he’s not in the right place. He needs to be moved to a real neuro rehab, and it needs to happen now.
momteacheradvocate 